About The Jeremiah Gracen TK2D Foundation

Turning A Death Sentence into a Lifeline of Hope

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For those who have either been diagnosed with or have loved ones with TK2D, here at The Jeremiah Gracen TK2D Foundation, we want you to know that you are not alone and there is hope.

In September of 2019, Jeremiah Gracen was diagnosed with TK2D. This rare progressive devastating disease affects the ability to eat, breathe and move. Jeremiah's mom Aneesa googled the disease and was heartbroken . All she saw were sad stories, death and the words no treatment...no cure...

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Mom set out to desperately save her son's life and make his story public hoping that the right researcher, doctor or even investor would see.  Jeremiah was fortunate enough to be accepted into a groundbreaking clinical trial for the disease and Aneesa stepped up to advocate in any way she can. She is a Grant Writer, Business and Marketing Consultant, Consumer Peer Reviewer for the Department of Defense, Support Ambassador for The United Mitochondrial Disease Foundation, Parent Ambassador for the American Academy of Pediatrics,  Member of the Medical University of South Carolina Patient and Family Advisory Council and a devoted mother of four boys including Jeremiah.

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Mom wanted to be a catalyst for positive change, and since diagnosis in 2019, she has been driven by the same ideals that frame this non-profit organization: support, empowerment , advocacy and education.

The Jeremiah Gracen TK2D Foundation emerged out of a pursuit to inspire and support the community affected , to educate others worldwide so that diagnosis rates would be more efficient, and a desire for actions to speak louder than words.