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Daily Global Advocacy

Since 2019, the story of Jeremiah Gracen has been shared and updated online. Using social media platforms such as Facebook, YouTube and Instagram, we have given light to a rare disease that many have never heard about.  Sharing the good and the bad, disease facts and more, word of mouth and social media has allowed this story of hope to be spread and followed worldwide.

Global Education

A disease is only rare and often misdiagnosed when people do not know enough about it. By offering to be a part of conferences, symposiums, guest speaking to medical professionals and to global communities, our commitment is to educate others about the disease regardless of their background.  Whether virtually or in person it is important to explain the disease TK2d in a way that anyone can understand.

Global Support

Our organization is committed to being a liaison for global support services for families affected by this rare devastating disease.  From connecting those suspected to testing services, offering hope to those in need, continuing to build rapport with other advocacy support groups, uniting families with the same diagnosis and being a valuable point of contact, we believe and know that our compassion and dedication create a much needed difference. 

Proud to Announce that Our Foundation has written the first ever book on TK2D. 

FOR MEDICAL PROFESSIONALS, YOU CAN REQUEST COPIES BY EMAILING  INFO@TK2DFOUNDATION.ORG

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